Juanita Hoe has blonde hair and is wearing a patterned turquoise top.

Professor Juanita Hoe

Professor in Dementia Care
School of Medicine and Biosciences
juanita.hoe@uwl.ac.uk

Juanita Hoe is Professor of Dementia Care at the Geller Institute of Ageing and Memory, School of Medicine, University of West London. Previously she worked as Reader in Mental Health at City, University of London and as Clinical Lecturer in Dementia and Nursing at UCL Division of Psychiatry, where she retains honorary positions. Juanita is also a Senior Researcher & Visiting Professor at the Millennium Institute for Caregiving Research (MICARE), Universidad Andrés Bello, Santiago, Chile 

She is an experienced nurse researcher in mixed methods research and clinical trials management. Her research programme builds upon her clinical expertise as a mental health nurse with over 30 years of clinical experience working within inpatient, day hospital, community, and acute hospital settings, and as an Admiral Nurse (dementia nurse specialist) supporting people with dementia and their families.

Juanita’s research focuses on building an evidence-base to improve the care and treatment of people with dementia and disseminate this knowledge into practice. This includes co-designing psychosocial interventions with service users and family carers for crisis management, needs assessment, peer support, reducing agitation, facilitating early diagnosis in dementia and strategies to support family carers. Currently, she is leading a study funded by the Dunhill Medical Trust to evaluate the validity, feasibility, and acceptability of a risk assessment tool for dementia.

Her previous collaborations have achieved academic, economic, and societal impact.  Achieved through establishing an evidence base for interventions such as cognitive stimulation therapy (CST), and strategies for relatives (START), which are now included in national (NICE) and international (WHO) guidance for dementia and are central to modern clinical practice. She also co-edited the 2nd edition of the Camberwell Assessment of Need for the Elderly (CANE). The CANE is now being used to assess the needs of older people across community and care settings in 24 countries worldwide.

As an educator, Juanita has substantial academic and clinical teaching experience across different HEIs and NHS Trusts. She is involved in the teaching and supervision of postgraduate and doctoral students and is the Director of Postgraduate Education for the Geller Institute of Ageing and Memory.

Juanita is an Associate Editor for the Journal of Aging and Mental Health, an international peer-reviewed journal focused on the biological, psychological, and social effects of aging on mental health.

  • Qualifications

    • PGCE, City, University London, UK, Oct 2017 – Jul 2018  
    • PhD in Mental Health Sciences, University College London, UK, Mar 2003 – Oct 2007  
    • MSc in Ageing & Mental Health, University College London, UK, Sep 1999 – Oct 2001  
    • DipHe Healthcare Practice, De Montfort University, Leicester, UK, Apr 1998 – May 1999  
    • RMN - Registered Mental Nurse, Charles Frears School of Nursing, Leicester, UK, Sep 1986 – Nov 1989

  • Memberships

    Fellow, Higher Education Academy (HEA), Oct 2019 – present
    Member, Higher Education Dementia Network (HEDN), Dec 2018 – present
    Member, INTERDEM, a pan-European research network, Feb 2018 – present
    Registrant, Nursing and Midwifery Council (NMC) Nov 1989 – present
    Full member, Royal College of Nursing (RCN)
    Member, RCN Research Society and RCN Older People's Forum
    Editorial board member and Associate Editor, Journal of Aging and Mental Health
    Editorial board member, International Journal of Nursing Studies Advances

Research

  • Research and publications

    Peer reviewed articles

    McCartney, A., Crosswell J.,Rafnsson, S.B. Hoe, J., (2024) The effectiveness of structured physical activity on agitation in people with dementia: a rapid review. Aging and Mental Health (submitted) 

    Maiden, N., Hide, S., Lockerbie, J., Stumpf, S., Hoe, J., Hirani, S., (2024) Evaluating an interactive tool that reasons about quality of life to support life planning by older people. Digital Health (Submitted). 

    Redley M., Poland, F., Hoe, J., Dening, T., Stanyon, M., Yates, J., Streater, A., Coleston-Shields, D., Orrell, M., (2024) Chatting: Family Carers' Perspectives on Receiving Support from Dementia Crisis Teams. MDPI Healthcare. (Submitted). 

    Wyman, D.L., Butler, L.T., Morgan-Trimmer, S., Bright, P., Barber, J., Budgett, J., Walters, K., Lang, I., Rapaport, P., Banks, S. Paloma, M., Orgeta, V., Livingston, G., Rockwood, K., Lord, K.,   Manthorpe, J., Dow, B., Hoe, J., Cooper, C., (2024). Process evaluation of a New psychosocial goal-setting and manualised support intervention for Independence in Dementia (NIDUS-Family). Age and Ageing, Available at: medRxiv 2024.02.06.24302127; https://doi.org/10.1101/2024.02.06.24302127 (Preprint).

    Dar., A, Budgett, J., Zabihi, S., Whitfield, E., Lang, I., Rapaport, P., Heath, B., Ogden, M., Phillips, R., Burton, A., Cooper, C., Butler, L.T., Wyman, D.L., Hoe, J., Manthorpe, J., Koutsoubelis, F., Cooper, C., (2024) Pre-implementation planning for the nidus-family intervention: exploring the perspective of professional stakeholders. BMC Geriatrics. https://doi.org/10.31219/osf.io/87euy (Preprint).

    Cooper, C., Zabihi, S., Akhtar, A., Lee, T., Abdinasir, I., Le Novere, M., Lord, K., Rapaport, P., Banks, S., Duggan, S.,  Ogden, M., Walters, K., Lang, I., Orgeta, V., Rockwood, K.,  Butler, L.T., Livingston, G., Manthorpe, J.,  Dow, B., Hoe, J., Hunter, R., Banerjee, S., Budgett, J., Duffy, L., (2024) Feasibility and acceptability of NIDUS-professional, a training and support intervention for homecare workers caring for clients living with dementia: a cluster- randomised feasibility trial. Age & Ageing (In press – accepted March 2024).

    Cooper, C., Vickerstaff, V., Barber, J., Phillips, R., Ogden, M., Walters, K., Lang, I., Rapaport, P., Orgeta, V., Rockwood, K., Banks, S., Palomo, M., Butler, L.T., Lord, K., Livingston, G., Banerjee, S., Manthorpe, J., Dow, B., Hoe, J., Hunter, R., Samus, Q., Budgett, J. (2024). A psychosocial goal-setting and manualised support intervention for independence in dementia (NIDUS-Family) versus goal setting and routine care: a single-masked, phase 3, superiority, randomised controlled trial. The Lancet Healthy Longevity, 5(2), pp.e141-e151. 

    Brown, P., Cooper, C., Harrison-Dening, K.H., Hoe, J. and Burton, A., (2024) An Exploration of How Specialist Dementia Nurses Perceive and Maintain the Skills and Competencies that Frame Their Specialism: A Qualitative Survey. Heliyon. doi: https://doi.org/10.1016/j.heliyon.2024.e27856 

    Hoe, J., Profyri, E., Kemp, C., Manela, M., Webster, L., Anthony, J., Costafreda, S., Arrojo, F., Souris, H. and Livingston, G., 2024. Risk assessment for people living with dementia: a systematic review. International Psychogeriatrics, pp. 263-288.

    Brown, P., Burton, A., Ayden, J., Dening, K.H., Hoe, J. and Cooper, C., 2023. Specialist dementia nursing models and impacts: a systematic review. Current Opinion in Psychiatry, pp.10-1097. 

    Hoe, J., Trickey, A., & McGraw, C. (2022). Caring for people living with dementia in their own homes: A qualitative study exploring the role and experiences of registered nurses within a district nursing service in the UK. International Journal of Older People Nursing, e12491. 

    Coleston-Shields, D.M., Challis, D., Worden, A., Broome, E., Dening, T., Guo, B., Hoe, J., Lloyd-Evans, B., Moniz-Cook, E., Morris, S. and Poland, F., 2022. Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): A Study Protocol for a Randomised Controlled Trial of a Resource Kit. Trials. 23(1), pp.1-12. 

    Parker, M., Barlow, S., Hoe, J., & Aitken, L. M. (2021). The Bubble of Normalisation: A Qualitative Study of Carers of People with Dementia Who Do Not Seek Help for a Diagnosis. Journal of Geriatric Psychiatry and Neurology, doi.org/10.1177/08919887211060018

    Sacre, M., Albert, R., & Hoe, J. (2022). What are the experiences and the perceptions of service users attending Emergency Department for a mental health crisis? A systematic review. International Journal of Mental Health Nursing. 31(2), pp.400-423. DOI: 10.1111/inm.12968

    Burton, A., Rapaport, P., Palomo, M., Lord, K., Budgett, J., Barber, J., Hunter, R., Butler, L., Vickerstaff, J., Rockwood, K., Ogden, M., Smith, D., Lang, I., Livingston, G., Dow, B., Kales, H., Manthorpe, J., Walters, K., Hoe, J., Orgeta, V., Samus Q., Cooper, C., on behalf of the NIDUS Study team (2021). Clinical and cost-effectiveness of a New psychosocial intervention to support Independence in Dementia (NIDUS-family) for family carers and people living with dementia in their own homes: a randomised controlled trial. Trials, 22(1), 1-14. DOI:https://doi.org/10.1186/s13063-021-05851-z

    Tobis, S., Jaracz, K., Kropińska, S., Talarska, D., Hoe, J., Wieczorowska-Tobis, K., & Suwalska, A. (2021). Needs of older persons living in long-term care institutions: on the usefulness of cluster approach. BMC Geriatrics, 21(1), 1-8.

    Yates, J., Stanyon, M., Challis, D., Coleston-Shields, D.M., Dening, T., Hoe, J., Jawahar, K., Lloyd-Evans, B., Moniz-Cook, E., Poland, F. and Streater, A., (2020). Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach. BMC psychiatry, 20(1),1-14. https://doi.org/10.1186/s12888-020-02899-0 

    Parker, M., Barlow, S., Hoe, J., & Aitken, L. M. (2020). Persistent barriers and facilitators to seeking help for a dementia diagnosis: a systematic review of 30 years of the perspectives of carers and people with dementia. International psychogeriatrics. 

    Robertson, S. Cooper, C. Hoe, J. Lord, K. Rapaport, P. Livingston, G (2019) Why do staff and family think differently about quality of life in dementia? A qualitative study exploring perspectives in care homes." International Journal of Geriatric Psychiatry,1–8. https://doi.org/10.1002/gps.5193 

    Stanyon, M., Streater, A., Coleston-Shields, D., Yates, J., Challis, D., Dening, T., Hoe, J., Lloyd-Evans, B., Mitchell, S., Moniz-Cook, E. and Poland, F., (2019). Development of an evidence-based ‘Best Practice Model’ for Teams Managing Crisis in Dementia: Protocol. JMIR Research Protocols. 

    Livingston G, Manela M, O’Keeffe A, Rapaport P, Cooper C, Knapp M, King D, Romeo R, Walker Z, Hoe J, Mummery C, Barber J (2019) Clinical effectiveness of START (STrAtegies for RelaTives) psychological intervention for family carers and the effects on cost of care for people with dementia: six year follow-up of a randomised controlled trial. British Journal of Psychiatry, 1-8 DOI: https://doi.org/10.1192/bjp.2019.160 

    Robertson, S., Cooper, C., Hoe, J., Lord, K., Rapaport, P., Marston, L., Cousins, S., Lyketsos, C. G., Livingston, G. (2019) Comparing Proxy Rated Quality of Life of People Living with Dementia in Care Homes. Psychological Medicine. 1-10 

    Livingston, G., Baio, G., Sommerlad, A., de Lusignan, S., Poulimenos, S., Morris, S., Rait G, Hoe, J. (2017). Effectiveness of an intervention to facilitate prompt referral to memory clinics in the United Kingdom: Cluster randomised controlled trial. PLoS Medicine, 14(3), e1002252. http://doi.org/10.1371/journal.pmed.1002252 

    Orrell, M., Hoe, J., Charlesworth, G., Russell, I., Challis, D., Moniz-Cook, E., Knapp, M., Woods, B., Hoare, Z., Aguirre, S., Toot, S., Streater, A., Crellin, N., Whittaker, C., d'Amico, F. and Rehill, A. (2017). Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions. Programme Grants for Applied Research, 5(5), pp. 1–186. doi:10.3310/pgfar05050. 

    Hoe J, Jesnick L, Turner R, Leavey G, Livingston, G. (2017). Caring for relatives with agitation at home: a qualitative study of positive coping strategies. BJPsych Open, 3, pp. 34–40. doi:10.1192/bjpo.bp.116.004069. 

    Robertson, S., Cooper, C., Hoe, J., Hamilton, O., Stringer, A. and Livingston, G. (2017) ‘Proxy rated quality of life of care home residents with dementia: a systematic review’, International Psychogeriatrics, pp. 1–13. doi: 10.1017/S1041610216002167. 

    Charlesworth G, Burnell K, Crellin N, Hoare Z, Hoe J, Knapp M, Russell I, Wenborn J, Woods B, Orrell M (2016) Peer support and reminiscence therapy for people with dementia and their family carers: a factorial pragmatic randomised trial. Journal of Neurology, Neurosurgery, and Psychiatry.  (Published online: doi:10.1136/jnnp-2016-313736) 

    Ledgerd R, Hoe J, Hoare Z, Devine M, Toot S, Challis D, Orrell M (2016) Identifying the causes, prevention and management of crises in dementia. An online survey of stakeholders. International Journal of Geriatric Psychiatry, 31:6:638-647. 

    Spector A, Charlesworth C, King M, Lattimer M, Sadek S, Marston L, Rehill A, Hoe J, Qazi A, Knapp M, Orrell M (2015) Cognitive–behavioural therapy for anxiety in dementia: pilot randomised controlled trial. British Journal of Psychiatry. 206:6:509-516 

    Reilly S, Miranda-Castillo C, Malouf R, Hoe J, Toot S, Challis D, Orrell M. (2015) Case management approaches to home support for people with dementia. Cochrane Database of Systematic Reviews, Issue 1. Art. No.: CD008345. 

    D'Amico F, Rehill A, Knapp M, Aguirre E, Donovan H, Hoare Z, Hoe J, Russell I, Spector A, Streater A, Whitaker C, Woods RT, Orrell M (2015) Maintenance cognitive stimulation therapy: an economic evaluation within a randomised controlled trial. Journal of the American Medical Directors Association,16:1:63-70. 

    Livingston G, Barber J, Rapaport P, Knapp M, Griffin M, King D, Romeo R, Livingston D, Mummery C, Walker Z, Hoe J, Cooper C (2014) Long-term clinical and cost-effectiveness of START (STrAtegies for RelaTives) psychological intervention for family carers and the effects on cost of care for people with dementia: a randomised controlled trial. The Lancet Psychiatry, 1:7:539-548. THELANCETPSYCH-D-14-00476 

    Orrell M, Aguirre E, Spector A, Hoare Z, Woods RT, Streater A, Donovan H, Hoe J, Knapp M, Whitaker C, & Russell I, (2014) Maintenance cognitive stimulation therapy for dementia: single-blind, multicentre, pragmatic randomised controlled trial. British Journal of Psychiatry. 204, 454–461. 

    Hoe J, Cooper C, Livingston G (2013) An overview of the Laser-AD study: a longitudinal epidemiological study of people with Alzheimer’s disease. International Review of Psychiatry, 25:6:659-672. 

    Livingston G, Barber J, Rapaport P, Knapp M, Griffin M, King D, Livingston D, Mummery C, Walker Z, Hoe J, Sampson EL, Cooper C (2013) The START study (STrAtegies for RelaTives): A pragmatic randomised controlled trial of a manual based coping strategy programme in promoting the mental health of family carers of people with dementia: paper 1 clinical effectiveness. British Medical Journal, 347:f6276. 

    Knapp M, King D, Romeo R, Barber J. Rapaport P, Griffin M, Livingston D, Walker Z, Hoe J, Cooper C, Livingston G (2013) The START study (STrAtegies for RelaTives). Cost-effectiveness of a manual-based coping strategy programme in promoting the mental health of family carers of people with dementia: a pragmatic randomised controlled trial. British Medical Journal, 347:f6342. 

    Charlesworth G, Burnell K, Hoe J, M Orrell M & Russell I (2013) Acceptance Checklist for Clinical Effectiveness Pilot Trials: a systematic approach. BMC Medical Research Methodology.13:78. 

    Aguirre E, Hoare Z, Streater A, Spector A, Woods B, Hoe J, Orrell M. (2013) Cognitive stimulation therapy (CST) for people with dementia—who benefits most?  International Journal of Geriatric Psychiatry. 28:3:284–290. 

    Hoare Z & Hoe J (2013) CPD Article: Understanding quantitative research: part 2. Nursing Standard. 27:18:48-55. 

    Hoe J & Hoare Z (2012) CPD Article: Understanding quantitative research: part 1. Nursing Standard. 27:15-17:52-57. 

    Spector A, Orrell M, Lattimer M, Hoe J, King M, Harwood K, Qazi A Charlesworth G (2012) "I can't forget to worry": A pilot Randomised Controlled Trial of Cognitive Behavioural Therapy (CBT) for anxiety in people with dementia. Trials, 13:197. 

    Toot S, Hoe J, Ledgerd R, Burnell K, Devine M, Orrell M (2012) Causes of crises and appropriate interventions: The views of people with dementia, carers and healthcare professionals. Aging & Mental Health. 17:3:328-335 

    Streater A, Spector A, Aguirre E, Hoe J, Hoare Z, Woods R, Russell I, Orrell M (2012) Maintenance Cognitive Stimulation therapy (CST) in practice - study protocol for a randomized controlled trial. Trials. 13:91. 

    Hoe J (2011) Review: Marte Meo counselling: a promising tool to support positive interactions between residents with dementia and nurses in nursing homes. Journal of Research in Nursing, 16:434-436. 

    Charlesworth G, Burnell K, Beecham J, Hoare Z, Hoe J, Wenborn J, Knapp M, Russell I, Woods B, Orrell M (2011) Peer support for family carers of people with dementia, alone or in combination with group reminiscence in a factorial design: study protocol for a randomised controlled trial. Trials, 12:205 

    Aguirre E, Spector A, Streater A, Hoe J, Russell IT, Knapp K, Woods RT & Orrell M, (2011) Development of an evidence-based extended programme of maintenance cognitive stimulation therapy (CST) for people with dementia.  Non Pharmacological Therapies for Dementia. 1:3:197-216. 

    Aguirre E, Spector A, Hoe J, Russell IT, Knapp K, Woods RT & Orrell M, (2010) Maintenance Cognitive Stimulation Therapy (CST) for dementia: A single-blind, multi-centre, randomized controlled trial of Maintenance CST vs. CST for dementia. Trials, 11:46. 

    Hoe J & Thompson R (2010) CPD Article: Promoting positive approaches to dementia care in nursing.  Nursing Standard. 25:4:47-56. 

    Burnell K, Hoe J, Miranda C, Aguirre E, Streater A, Charlesworth G, Orrell M, (2009) Introducing Support at Home: Interventions to Enhance Life in Dementia (SHIELD): Five year research programme funded by the national institute for health research, generations review, Newsletter of the British Society of Gerontology, vol. 19, no. 2. 

    Hoe J & Orrell M. (2008) clinical review: quality of life in dementia.  Dementia Forum. 1:4:6-10. 

    Hoe J. Hancock G. Livingston G. Woods B. Challis D. Orrell M. (2009) Changes in the quality of life of people with dementia living in residential homes. Alzheimer Disease & Associated Disorders, 23:3:285-290. 

    Orrell M. Hancock G. Liyanage C.G.K. Woods B. Challis D. Hoe J. (2008) The needs of people with dementia in care homes: the perspectives of user, staff, and family caregivers. International Psychogeriatrics, 20:5:941-951. 

    Orrell M. Hancock G. Hoe J. Woods B. Livingston G. Challis D. (2007) A cluster randomised controlled trial to reduce the unmet needs of people with dementia living in residential care. International Journal of Geriatric Psychiatry, 22:1127-1134. 

    Hoe J. Katona C. Orrell M. Livingston G. (2007) Quality of life in dementia: care recipient and caregiver perceptions of quality of life in dementia: The LASER-AD study. International Journal of Geriatric Psychiatry, 22:1031-1036. 

    Katona, C., Livingston, G., Cooper, C., Ames, D., Brodaty, H., & Chiu, E. on behalf of the Consensus Group (2007). International Psychogeriatric Association consensus statement on defining and measuring treatment benefits in dementia. International Psychogeriatrics, 19(3), 345-354. 

    Hoe, J. (2006). Partners in Care Training Resource. Mike McClure (ed.) London: Royal College of Psychiatrists, 2005, £45.00, 256 sheets in ring-binder CD–ROM, ISBN: 190467128 4. Psychiatric Bulletin, 30(11), 438-439. doi:10.1192/pb.30.11.438-b 

    Hoe J. Hancock G. Livingston G. Orrell M. (2006) Quality of life of people with dementia in residential homes.  British Journal of Psychiatry. 188:460-464. 

    Hoe J. Ashaye K. Orrell M. (2005) Don’t seize the day hospital! Recent research on the effectiveness of day hospitals for older people with mental health problems.  International Journal of Geriatric Psychiatry, 20:694-698. 

    Hoe J. Katona C. Roche B. Livingston G (2005) Use of the QOL-AD for measuring Quality of Life in people with severe dementia - The LASER-AD study. Age & Ageing. 34:2:130-135. 

    Reynolds T. Thornicroft G. Abas M. Woods B. Hoe J. Leese M. Orrell M. (2000) Camberwell Assessment of Need for the Elderly (CANE). British Journal of Psychiatry, 176:444-452 

    Books and chapters

    Hoe J., & Thompson R (2024) Introductory skills for conducting psychosocial interventions in dementia care. In: Callaghan, P., Felton, A., Dickinson T., (2024) Mental Health Nursing Skills. 2nd edition. Oxford University Press. (In press – book launch Spring 2024) 

    Hoe J & Orrell M. (2021) eds: CANE: Camberwell Assessment of Need for the Elderly. 2nd Edition Cambridge University Press: Co-publisher Royal College of Psychiatrists: London (In press)

    Aguirre E, Spector A, Streater A, Hoe J, Woods B, Orrell M (2011) Making a difference. An evidence-based group programme to offer maintenance cognitive stimulation therapy (CST) to people with dementia. The manual for group leaders.  Hawker publications: London. 

    Ashaye K, Jayalath D, Hoe J, (2021) An Introduction to Needs Assessment and Use of the Camberwell Assessment of Need for the Elderly. In: Hoe J & Orrell M. eds: CANE: Camberwell Assessment of Need for the Elderly. 2nd Edition Cambridge University Press: Co-publisher Royal College of Psychiatrists: London: 1-9  

    Hoe J, Ledgerd R, Toot S, Orrell M, (2021) Crisis and Assessment of Need in Dementia: Development of a Home Treatment Package. In: Hoe J & Orrell M.  eds: CANE: Camberwell Assessment of Need for the Elderly. 2nd Edition Cambridge University Press: Co-publisher Royal College of Psychiatrists: London: 62-76  

    Hoe J. & Orrell M (2021) The Future of Needs Assessment Research. In: Hoe J &. Orrell M. ed CANE: Camberwell Assessment of Need for the Elderly. 2nd Edition Cambridge University Press: Co-publisher Royal College of Psychiatrists: London: 97-104  

    Hoe J, Orrell M, Livingston G. (2011) Quality of Life Measures in Old Age. In: Abou Saleh M, Anand K, Katona C. eds: Principles and Practice of Geriatric Psychiatry, 3rd Edition. Wiley-Blackwell: Chichester: 183-192 

    Hoe J. Orrell M. Lambert J. Prettyman R. (2004) The Needs of Long-Term Day Hospital Attenders.  In: Orrell M. & Hancock G. ed CANE: Camberwell Assessment of Need for the Elderly.  Gaskell. London: 57-66. 

    Protocols

    McCartney, A., Crosswell, J., Rafnsson, S. B., Hoe, J., (2023). The effect of physical activity on agitation in older adults living with dementia: a rapid review. PROSPERO 2023 CRD42023392894 

    Coleston-Shields, D.M., Challis, D., Worden, A., Broome, E., Dening, T., Guo, B., Hoe, J., Lloyd-Evans, B., Moniz-Cook, E., Morris, S. and Poland, F., 2022. Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): A Study Protocol for a Randomised Controlled Trial of a Resource Kit. Trials. 23(1), pp.1-12.

    Hoe J, Profyri E, Livingston G, Costafreda Gonzalez S, Manela M, Webster L. Risk assessment in people with dementia: protocol for a systematic review. PROSPERO 2020 CRD42020187519 

    Parker M, Barlow S, Hoe J, Aitken L. (2018) The factors that influence people with dementia and/or their carers to seek help for a diagnosis of dementia. A systematic review. PROSPERO 2018 CRD42018092524

    Vikhanova A, Kemp C, Simpson A, Hoe J. (2018) Interventions to reduce frequent attendance at emergency departments: an umbrella review of the current evidence. PROSPERO 2018 CRD42018107006

    Vikhanova A, Kemp C, Simpson A, Hoe J. (2018) Experiences of frequent users of emergency departments: a systematic review of the qualitative evidence. PROSPERO 2018 CRD42018107683

    Robertson S, Livingston G, Hoe J, Cooper C. (2015) A systematic review of the factors associated with quantitative ratings of quality of life for family carers, paid carers and people with dementia. PROSPERO 2015 CRD42015016539 

    Reilly S, Miranda-Castillo C, Sandhu S, Hoe J, Challis D, Orrell M. (2010) Case/care management approaches to home support for people with dementia (Protocol/Cochrane Database of Systematic Reviews). 

    Burnell K, Charlesworth G, Feast A, Hoe J, Poland F, & Orrell M. (2010). Peer support interventions for family carers of adults with chronic mental or physical illness who are living at home Protocol/Cochrane Database of Systematic Reviews. 

  • Conferences

    Conference presentations

    Sept 2023 Psychosocial interventions in dementia: an evidence-base for practice. Quarterly Dementia and Older Person's Education morning for Cornwall Partnership NHS Foundation Trust. One hour online Webinar – invited speaker 

    June 2023 Risk Assessment in People living with Dementia: A Systematic Review. IPA conference Lisbon, Portugal. Poster presentation 

    June 2023 Latest development in needs assessment and the CANE: a global view. IPA conference Lisbon, Portugal. Symposium - invited speaker 

    Nov 2022 Early Career Research seminar to nursing doctoral students. PhD in Nursing Science Faculty, Universidad Andres Bello in Santiago, Chile. Invited speaker 

    Nov 2022 Psychosocial interventions in dementia: an evidence-base for practice. Millennium Institute for Care Research (MICARE),Universidad Andres Bello in Santiago, Chile. Keynote address and webinarhttps://www.youtube.com/watch?v=wRXh8Cf2EYw 

    Nov 2019 FED-D study: Facilitating Early Diagnosis in Dementia.  First Dementia Conference Krems - Timely Diagnosis of Dementia - Coordinated Efforts in Europe Between East and West". Krems, Austria. Oral Presentation 

    Oct 2019 Caring for relatives with agitation at home: a qualitative study of positive coping strategies. Alzheimer’s Europe Conference, The Hague Netherlands. Oral presentation 

    July 2019 Caring for relatives with agitation at home: a qualitative study of positive coping strategies. UCL Institute of Mental Health Launch, London UK. Poster presentation 

    May 2019 Caring for relatives with agitation at home: a qualitative study of positive coping strategies. Alzheimer’s Society Annual Conference, London UK. Poster presentation 

    March 2019 Caring for relatives with agitation at home. Raising quality of life in people living with dementia - MARQUE Report launch, ILC, London, UK. Oral presentation/Panel discussion 

    Oct 2018 Research profile. INTERDEM Annual Meeting. Alzheimer’s Europe Conference. Barcelona, Spain. Oral presentation. 

    July 2016 FED-D study: Facilitating Early Diagnosis in Dementia.  Alzheimer’s Society Research Conference. Bristol, UK. Oral presentation 

    May 2016 Managing agitation at home: a qualitative study of domestic carers for people with dementia. MARQUE conference. UCL. Oral presentation 

    Feb 2016 Facilitating Early Diagnosis of Dementia (FED-D) study. Mental Health & Dementia Research Showcase. CRN/NoClor Research Showcase. RCGP London, UK. Oral presentation.

    March 2016 Managing challenging behaviour in dementia: a pilot training programme. Whittington Health Education Conference, London, UK. Oral presentation - invited speaker 

    June 2015 FED-D study: Facilitating Early Diagnosis in Dementia.  Alzheimer’s Society Research Conference. Manchester, UK. Poster presentation 

    June 2015 START Study: Strategies for Relatives.  Seminar for Older Person’s Nurse Fellowship. Kings College London. Oral presentation – invited speaker. 

    May 2015 Burdett Dementia Project. Whittington Health Effective Care Conference, London, UK. Poster presentation:2015. (1st prize in poster competition). 

    April 2015 START Study: Strategies for Relatives. 30th International Conference of Alzheimer's disease International. Perth, Australia. Poster presentation 

    March 2015 Dementia & Acute Care Conference - I organised this conference as part of the Burdett Dementia Project as Whittington Health, London. Oral presentation. 

    Feb 2015 Caring for Carers Medicine for Members: Expert talks. St Pancras Hospital, Camden & Islington NHS Foundation Trust. Oral presentation – invited speaker  

    Oct 2014 Facilitating Early Diagnosis in Dementia (FED-D study): C&I 3rd Annual Research Showcase. RCGP London, UK. Oral presentation.  

    July 2014 SPRU Seminar: START (STrAtegies for RelaTives) Study for Family Carers of People with Dementia). University of York, UK. Oral presentation - invited speaker 

    Apr 2013 Representative for the RCN on the James Lind Alliance project to identify research priorities for dementia research. 

    Feb 2013 Support at Home - Interventions to Enhance Life in Dementia (SHIELD). Sixth Annual Interprofessional Geriatrics symposium. Florida, USA. Oral presentation – invited speaker  

    Jan 2012 The START study - training carers in dementia - Study and manual. Older Person’s Conference – NELFT. Oral presentation 

    Feb 2011 Improving Quality of Life for People with Dementia. Evening Lecture series, Canterbury Christ Church University. Oral presentation - invited speaker 

    March 2010 The role of admiral nurses in memory services. National Memory Services Congress. London, UK. Oral presentation, invited speaker. 

    March 2010 Development of the Maintenance Cognitive Stimulation Therapy Manual. 25th International Conference of Alzheimer's disease International. Thessaloniki, Greece. Oral presentation 

    Sept 2009 Representative for Professor Orrell at the INTERDEM (Early detection and timely Intervention in Dementia) Annual Meeting, Berlin. 

    Nov 2006 IPA Psychogeriatric Association Consensus Conference: Defining and measuring treatment benefits in dementia’. I was invited as the representative for the Nursing profession nurse representative. 

    Oct 2006 I was invited to speak at the University of Balamand, Lebanon, on Mental Health Wellbeing of the Elderly: cognitive capacities: Lecture presentation – invited speaker 

    June 2006 Staff and Patient Perception of Quality of Life of People in Residential Homes using the QOL-AD. Affective, Behavioural and Cognitive Disorders in the Elderly. 4th Bologna International Meeting, Italy. Oral presentation. 

    May 2006 Measuring Quality of Life in severe dementia. Admiral Nurse Forum, Manchester, UK. Oral presentation. 

    Jan 2006 Parliamentary briefing on NICE's decision on Antidementia drugs. House of Commons, Parliament, London, UK. I was invited as representative for charity for dementia. 

    Jul 2005 Quality of Life in Dementia. Evidence based Practice Day, NELMHT. Poster presentation (1st prize in poster competition). 

    Oct 2004 Staff and patient perception of Quality of Life (QoL) of people in residential homes using the QOL-AD.  PROCARE: Providing integrated health and social care for older persons - Facing the challenges in Europe. European Centre for Social Welfare Policy and Research and PROCARE. Venice, Italy. Poster presentation. 

    Jan 2003 Camberwell Assessment of Need in the Elderly (CANE). Single Assessment Process Implementation Workshop. Department of Health. London. Oral presentation, invited speaker. 

    Nov 2002 The needs of patients attending old age psychiatry day hospitals for a year or more. EAG: Mental and Somatic Health in the Aging Society, A European Perspective. Padua, Italy. Poster presentation. 

    Conference abstracts

    McCartney, A., Crosswell, J., Hoe, J. and Rafnsson, S.B., 2024. 1852 The effectiveness of structured physical activity on agitation for people living with dementia: a rapid review. Age and Ageing, 53(Supplement_1), pp.afad246-125.https://doi.org/10.1093/ageing/afad246.125 

    Hoe J. P92: Risk Assessment in People living with Dementia: A Systematic Review. International Psychogeriatrics. 2023;35(S1):208-208. doi:10.1017/S1041610223003617 

    Brown, P.C., Burton, A., Ayden, J., Harrison‐Dening, K., Hoe, J. and Cooper, C., 2023. Exploring specialist dementia nursing models and their impact on people living with dementia and their family: A systematic review. Alzheimer's & Dementia, 19, p.e078020. 

    Yong, K.X., Bancroft, M.J., Bai, Y., Hayes, O.S., Mahendran, S., Ocal, D., Brotherhood, E.V., Hoe, J., Kaski, D., Pisella, L. and Crutch, S.J., 2023. Where is my hand? Proprioceptive disturbances in posterior cortical atrophy and typical Alzheimer’s disease. Alzheimer's & Dementia, 19, p.e078191. 

    Bancroft, M.J., Hayes, O.S., Ocal, D., Brotherhood, E.V., Hoe, J., Kaski, D., McIntosh, R.D., Crutch, S.J., Day, B.L. and Yong, K.X., 2023. Effects of clutter on reaching in posterior cortical atrophy and typical Alzheimer’s Disease. Alzheimer's & Dementia, 19, p.e077352. 

    Budgett, J., Barber, J., Hunter, R.M., Rapaport, P., Lord, K., Livingston, G., Manthorpe, J., Hoe, J., Rockwood, K., Howard, R.J. and Butler, L., 2023. Clinical effectiveness of the NIDUS randomised control trial of a tailored, goal‐focused intervention for increasing goal attainment in people living with dementia and their family carers. Alzheimer's & Dementia, 19, p.e071062. 

    Robertson, S., Cooper, C., Hoe, J., Lord, K. and Livingston, G. (2017). How can we explain why paid staff and family relatives think differently about the quality of life of people with dementia in care homes? Alzheimer's & Dementia, 13(7). doi:10.1016/j.jalz.2017.06.1810.  

    Robertson, S., Cooper, C., Hoe, J. & Livingston, G. (2017). [O4-08-01]: Do paid and family caregivers rate the quality of life of someone with dementia living in a care home in the same way? Alzheimer's & Dementia, 13(7S_Part_26). doi:10.1016/j.jalz.2017.07.460.                        

    Robertson, S., Cooper, C., Hoe, J. and Livingston, G. (2016). P4-243: A Systematic Review and Meta-Analysis Comparing Quality-Of-Life Ratings from Family and Paid Caregivers of People with Dementia Residing in Care Homes. Alzheimer's & Dementia, 12. doi:10.1016/j.jalz.2016.06.2335                                                                  

    Livingston, G., Knapp, M., Julie, B., Cooper, C., Rapaport, P., Walker, Z., Griffin, M., King, D., Mummery, C., Hoe, J. & Romeo, R., 2014. P4‐345: The long‐term clinical effectiveness of start (strategies for relatives) for family carers of people with dementia and the effects on cost of care. Alzheimer's & Dementia, 10, P914-P915. doi:10.1016/j.jalz.2014.07.115                                                                   

    Hoe J & Livingston G, (2015). The START Study (Strategies for Relatives). Abstract Booklet: Care, Cure and the Dementia Experience – A Global Challenge. 30th International Conference of Alzheimer’s Disease International. P212 www.alzint.org/2015 

    Orrell, M., Toot, S., Hoe, J. and Ledgerd, R. (2014). P3-386: Understanding and managing crises in dementia. Alzheimer's & Dementia, 10. doi:10.1016/j.jalz.2014.05.1480.

    Ledgerd, R., Hoe, J., Challis, D., Toot, S., & Orrell, M. (2011). What causes a crisis for people with dementia and their carers?. Aging & Mental Health, 15, 26-26.

    Hoe J & Aguirre, (2010) Development of the maintenance cognitive stimulation therapy manual. Abstracts – Oral presentations: 25th International Conference of Alzheimer’s Disease International (ADI). P92

  • Research degree supervision

    My area of expertise is in dementia related research and the use of mixed method approaches. 

    I have co-supervised three PhD students to completion. I am currently primary supervisor for two PhD students at UWL and am a supervisor for post-doctoral fellowships (UCL).

    I welcome enquiries from potential applicants working in the field of dementia, or with a focus on the health and social care of people with dementia across a range of community and care settings.

    Current supervisions:

    • Lori Bourke - A Mixed-methods Investigation into the Factors which Influence Frequent Use of Emergency Departments by People with Dementia. (UWL – Primary supervisor)  
    • Marlon Stiell – What is the lived experience of paramedics providing person-centred care for people with Dementia?  (UWL – Primary supervisor)  

     

    Previous supervisions:  

    • Aileen McCartney – PhD NIHR bridging fellowship (UWL – Primary supervisor) 
    • Pat Brown – ESRC and Dementia UK joint-funded PhD fellowship student (UCL – subsidiary supervisor) 
    • Michelle Parker – We need to talk about dementia: The role of stigma and the social network in preventing help seeking for a diagnosis of dementia. (City – second supervisor from Nov 2017). Doctorate awarded 2020.  
    • Sarah Robertson – Comparing proxy rated Quality of life of people with dementia in care homes (full-time) (UCL – second supervisor). Doctorate awarded 2017.  
    • Sandeep Toot – Crises in the homes of people with dementia and appropriate interventions (part-time) (UCL – second supervisor). Doctorate awarded 2014.  

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